A 2 Month Review

At some point during our hospital stay, I started to keep track of the things that were happening in the world as an outside time stamp on the duration of our stay…it turns out to be another way of looking at the time that Liam was with us. I wrote it in an amateur attempt to emulate the Harper’s Weekly Review that they do each Tuesday, so here we go:

A new country joined the world when people in southern Sudan voted to separate from the north. Citizens in five countries spread out on two continents started revolutions – Tunisia, Bahrain, Iraq, Yemen, and Egypt – and the Green Bay Packers won the Super Bowl.

Christmas and New Year’s were celebrated, as was Jamie’s 40th birthday. People remembered the 25th anniversary of the Challenger disaster; and President Obama said “This is our generation’s Sputnik moment” during the State Of The Union speech.

A suicide bomber attacked the Moscow airport and killed 34 people. In Arizona, a failed attempt at assassinating Representative Gabrielle Giffords did end up with six others dead – including a 9 year old girl. The US Congress first voted down the 9/11 Responders Bill, then following much public displeasure, reversed course and passed the bill. Politicians in Wisconsin tried to pass anti-union measures.

Wikipedia turned 10 and Facebook turned 7 while world food prices hit record highs. It snowed a bunch and turned bitter cold in the Denver area, and Oren and Ahna entered the world of smart phones and digital readers. A computer beat a human at Jeopardy. Wikileaks exposed thousands of classified documents, and Don’t Ask Don’t Tell was finally repealed. We celebrated Valentine’s Day and there were 93,052 visits to the blog.

Ezra Goes Skiing

It had to happen sooner or later, and sooner was definitely the preferred of the two options. So, last night we took Ezra and rented him skis and boots, and this morning we hit the slopes at Arapahoe Basin. When he first put on the boots last night, he wasn’t so sure about keeping them on for an extended period of time, but he did think that they were pretty cool – and that carried through to this morning.

We packed everything up and hit the road for the 1.5 hour drive. We arrived at A-Basin just after 9am and it was already sunny and warming up quickly – a perfect spring skiing, Colorado bluebird kinda day. If you’ve never been to A-Basin, well your simply missing out on one of the great things in the world. It’s not a pretentious, stuck-up, expensive ski resort that charges $10 to park a mile away (Breck, Vail, etc, etc, etc). So, we were able to secure a spot that was literally 20 feet away from the ski run, and no more than 100 feet from the chairlift for the beginner area. After a long walk of nearly 10 seconds, we were ready to go.

Ezra had his boots on and clipped into his skis with no issue at all…it just took him most of the time that we were there to understand how to balance and stand on the skis (and he’s still not there just yet) – especially when they were moving. We started off on the Magic Carpet lift, which turns out to be the steepest one of those in North America; and off we went. After the first run, Ezra smiled and asked: Again! So I obliged and we did it several more times. After those trips, I decided to take him up the chairlift and go for a little longer of runs. I would hold him between my legs, and we would sometimes go fast, sometimes make turns, and sometimes forget to stop where we were supposed to.

After a little more than an hour, Ezra asked to stop and to take off the boots. We did, and the skiing for the day was over. I don’t know that any of us could have asked for a better experience. Ezra talked this afternoon about going skiing and going fast down the hill, and when asked about going again soon, it’s a simple smile and a ‘yyyeeessss!’

PS – Ahna was the assigned sports photographer for the day, and I think that she did an amazing job.

Home Again

We left Santa Fe and drove towards Taos for an overnight before heading home. Before leaving New Mexico we had to make two stops – oddly in the same small town of Cimarron (population 900). The first was a quick jaunt down to the Philmont Scout Ranch so I could show Ahna the physical location that is home to lots of stories of mine from a summer working there in 1995. The second was in the ‘downtown’ area to meet up with our great friend, Tori. She and her husband recently moved down to the area down there and we subsequently don’t get to see them as much as we would like to. So we stopped for playtime at a park and some ice cream before the rest of the drive home (PS – Ezra did amazing on the drive in both directions without a single complaint about being in the car. It leaves us optimistic for future road travels).

After we arrived back home and unpacked, we were greeted to a ton of cards from people: thank you! They mean so much. We were also greeted with the sudden rush back to reality and the emotional dump that the last four days have been missing. It was really easy to pretend at times during our trip that we aren’t dealing with loosing Liam, and that it was all just a weird and bad dream – which was sort of the purpose of the escape: to escape as much as possible. But coming back home to all of our stuff and to all of Liam’s stuff was a pretty harsh reminder.

This morning marks two weeks since Liam passed away. It’s so hard to believe that it’s been that long – and I have a feeling that we are going to be saying that at each and every anniversary/marker for the rest of our lives. The strange new reality continues to find it’s way to the surface.


Reconnecting Santa Fe Style

Outside of the hospital walls, the largest struggle that we had as a consequence of our stay was our relationship with Ezra. That’s not to say that it suffered, it was just significantly changed for a few months where we became the visitors; and his grandparents, aunts, uncles, and cousins became his immediate family.

Now, this must all be underscored with the fact that Ezra is amazing and extraordinarily resilient. Ahna and I had a lot of reservations about how things were going to go with the both of us at the hospital 24/7, and for the most part they have all been proved unnecessary. Since our return home, there really hasn’t been any outward signs that he is having a difficult time adapting back to being with us (he did struggle pretty hard for the first week of sleeping nights – up five or six times each night for extended stretches – but that was due to a sinus infection that has hopefully met it’s foe in some antibiotics). We know that he is at a perfect age (if there is one) to cope with the massive changes that he has been faced with, but we also know that things could have gone a completely different way had we either had a different family support group or had Ezra had a less amicable personality.

That all said, we agreed that we needed a little family reset time. As impossibly hard as it turned out to be to leave town, we ended up picking a visit to a place that we haven’t visited together (Ahna 11 years ago, Oren never) – which turns out to be a hard thing to find in a six hour drive radius. As we drove across the state line yesterday – under perfectly clear skies and empty roads – we also realized that while Ezra has gone to many states and several countries, all of them had been by plane: it was his first time crossing a state line in a car. The drive was simple and fast, the weather is perfect, the city is waiting to be explored today, and the time is precious.

a downtown church, just after dinner

Bereaved Parents Wish List

This list is adapted from something that the hospital gave us and another parent had put together. It is our hope that you read this and it will hopefully allow you to feel more comfortable around and with us. This is a very difficult time for everyone, and we know that none of us really know what to do or say.

– We wish that Liam hadn’t died. We wish that we had him back.

– We wish that you won’t be afraid to speak Liam’s name. He lived and was very important to us. We need to hear that he was important to you also.

– If we cry and get emotional when you talk about Liam, we wish you knew that it isn’t because you have hurt us. Liam’s death is the cause of our tears. You have talked about him, and you have allowed us to share in our grief. We thank you for both.

– Being a bereaved parent isn’t contagious, so please don’t shy away from us. We need you now more than ever.

– We need diversions, so we do want to hear about you, your family, and your life. But we also want you to hear about us. We might be sad or cry, but please also let us talk about Liam.

– We know that you think and pray for us often. We also know that Liam’s death pains you, too. We wish you would let us know these things through a phone call, a card, a note, an e-mail, a text, or a real big hug.

– We wish that you won’t expect our grief to be over in six months. These first months are traumatic for us, but we hope that you understand that our grief will never be over. We will suffer the loss of Liam until the day that we die.

– We are working very hard in our recovery, but we wish you could understand that we will never fully recover. We will always miss Liam, and we will always grieve that he is dead.

– We wish that you wouldn’t expect us not to think about it or to be happy. Neither will happen for a very long time, so don’t frustrate yourself.

– We don’t want to have a pity party, but we do wish you would let us grieve. We must hurt before we can heal.

– We wish you understood how our lives have shattered. We know it is miserable for you to be around us when we’re feeling miserable. Please be as patient with us as we are with you.

– When we say we are doing okay, we wish you could understand that we don’t feel okay and that we struggle daily.

– We wish you knew that all of the grief reactions we are having are very normal. Depression, anger, hopelessness and overwhelming sadness are all to be expected. So please excuse us when we are quiet and withdrawn or irritable and cranky.

– Your advice to ‘take one day at a time’ is excellent advice. However, sometimes a day is too much and too fast for us right now. We wish that you could understand that sometimes the best way is a minute or an hour at a time.

– We hope that if you see us out and about that you say hi. We might be smiling or laughing, joking or having a good time – that’s okay to do. Please don’t think that it’s because we are not appropriately grieving.

– Please excuse us if we are rude, it is certainly not our intent. Sometimes the world around us goes by too fast, and we need to get off. When we walk away, please let us find a quiet place to spend some time alone.

– We wish you understood that grief changes people. When Liam died, a big part of us died with him. We are not the same people that we were before Liam died, and we will never be those people again.

– We wish very much that you could understand – understand our loss and our grief, our silence and our tears, our void and our pain. But we pray daily that you will never, ever understand.

More Random Photo Discoveries

In what thus far takes the cake for the most random assortment of discovered photos, we dumped all of the pictures off of Ahna’s cell phone the other day and came upon a few lost treasures. One or two of these might have appeared on the blog in the past, but they are mostly new – even to me – and they cover what is actually a pretty large amount of time…in the neighborhood of 20 months. Oh, and the big one is one of my favorite pictures of Ezra – a la ‘A Snowy Day’

Ezra’s Happenings

A few more pictures detailing what Ezra has been up to.

Ezra Dancing

A video of Ezra dancing to the song ‘Sigh No More’ by Mumford and Sons. This has been a favorite of his for a few months, and almost every time he comes to the hospital he breaks out the public performance of his interpretative dance. The video is super cute (although he has done a better job of singing other times) and runs the 3min 30sec legnth of the song…don’t worry, nobody gets offended if you don’t make it all of the way…that said – the song is worth your time, as it was featured in the Best of 2010 Playlist posted here a few weeks ago.

Without further ado:

 

Absent

Sorry that the blog has been left behind for the last day and a half….honestly, I have been a unmotivated to write anything, so nothing gets written. And tonight really isn’t much different, I just thought that I needed to say it to you all. Maybe more tomorrow – we’ll see how the night goes.

With a blanket from Sara

Ezra haninging out at the hospital this morning

FAQs: An Update

Well, we have been here a lot longer than any of us have anticipated…so, it’s time for a quick revisit to the answers to see if they have changed or been rethought at all.

Where are you sleeping? On the same crappy bed, but it seems to have gotten a lot crappier over the past several weeks. We are still both staying each and every night here (also meaning that our parents are still shouldering the load of watching Ezra – and doing it beautifully, if I might add). Unfortunately, beds don’t seem to grow over time – no matter how much you wish for it. The good news is that our oft-wondered question has been answered in the affirmative: If you through-hike the Appalachian Trail, do you think you could stand months on end of sleeping on a thermarest? Ok, that has never been a question that has seriously been asked, but still the answer remains the same…and the thermarest might even be more comfortable.

How is the cafeteria food? Although the ketchup situation resolved itself with the help of friends from Ohio, the overall food situation hasn’t improved. We have broken out of here for a few meals, and we have had family bring us some stuff; but 7 weeks of eating away from home is getting really old no matter how you cut it. We have found some ways to cope by bringing stuff in (cereal, snacks, etc), but we are still often limited to the offers from the kitchen staff downstairs – I can confirm that they have a very limited vegetarian selection….and I know that both of our digestive systems have undergone a reconditioning that will hopefully make them tough enough to handle the most remote food options after this.

How’s the drive? Well, you’ll have to ask our parents that question. Due to a combination of Liam’s condition and the weather over the past two weeks, we haven’t gone home. We just don’t want to end up that far away if we are needed here…and a lot of snow on the roads have really hampered any thoughts of going somewhere other than the occasional local Target run (it isn’t the snow that we are concerned about, but the fact that we would end up 35 miles away with slow driving people in our way). Since we haven’t been able to go home, our folks have been more than accommodating in figuring out a way to get themselves and Ezra up here almost everyday – which is always a remarkable bright spot in the day.

Showers? I think that we have figured out that the earlier you go, the warmer your shower is likely to be…which is somewhat confusing to me since we are in a 24-hr hospital. It’s bizarre that they are apparently on a limited water supply that would rival most residential home systems. When we were still going home pretty often, it was nice to be able to shower there and do the things that take more time and space (good clean of hair – for Ahna…the jokes about me are too obvious, a shave, etc); but since we are showering here, we are forced to make due with what we have…and Ahna can confirm that blow drying a head full of hair in a steamroom is annoying at best; and I can confirm that trying to shave using a sink with an automatic faucet that times out and stops working after a little while will make you want to say a lot of four letter words.

Do you get sick on those elevators? Still no, but we are completely sick of the elevators. There seems to be one that breaks down fairly often, leaving the vast majority of people fighting for space on the other one….and because of this, you can count on stopping at each and every floor each and every trip up and down. We do try to take the stairs when we can (even though they are completely out of the way…very poor design), but sometimes after that cafeteria food it just isn’t that good of an idea.

How are you doing? If you’ve been keeping up with the blog, you could probably come up with the appropriate answer to this question. Still mostly the same, but really stir crazy right now…and really wanting to be back home. We have found a game that we have been playing back and forth to occupy some of our time (Words With Friends…do you have the app? If not, go get it…and let me know your username…maybe we can play sometime).

Update on the nurses and the pumps….not really an update to a FAQ, but an update none-the-less. A few days ago I did a posting about the pumps in the rooms and mentioned how it seemed that the alarms would inevitably sound whenever our nurse was unavailable. Since then, it was nicely brought to my attention (insert throat-clearing noise and sneaky look to another person here) that perception doesn’t always meet up with reality….and that the majority of the time the nurses are really and willing as soon as that alarm sounds. Because we truly have the best nurses available, it’s time to smile and not insert the sarcastic humor that would normally go here.