Elia Medical News: UPDATED: Urachal Remnant

Whew. That was a long day. Surgery complete.

I have come to realize that when we – as adults – have a medical procedure done that requires fasting, it’s a pretty simple proposition…just stop eating, and voila! Doctors are happy and we are only slightly grumpy. It turns out that the previously mentioned equation isn’t quite so simple with infants. Since Elia was going to experience general anesthesia, they required that she not have anything in her stomach for four hours prior to the scheduled procedure. The surgery was scheduled at 9am, we had to be at the hospital at 7am, we had to leave the house at 6am, and she had to feed at 5am. Oh, and that meant that we had to position the feeding schedule to hit the goal of 5am well into the previous day so as not to go too far or too close between those feedings overnight. And all of that works out if the hospital is on time – which they weren’t, by 45 minutes. Honestly, Elia did surprisingly well and the delay was potentially at least partially our fault: unlike when you are counting spacing between regular feedings, where you start the clock at the beginning of the feeding cycle; this time they meant that we were to start the clock at the end of the feeding cycle (which was never properly relayed to us), and while they never came out and said that it was delayed because of this, there was a mention of this being a problem, which would account for 30 of the 45 minute delay.

Anyhow, weeks of anticipation, and tons of anxiety culminated when the Anesthesiologist calmly took Elia and disappeared down the hallway. The procedure was scheduled to be 60 minutes long, and as anyone who as ever waited for a surgery to be completed, it seemed to take a month for that time to pass…and every single minute that the anticipated length grew, our heartbeat mirrored in increased repetition. The reality of the situation was that the procedure went almost exactly on time, the lead Doctor was very calm and reassuring, the Anesthesiologist was outstanding, the Nurses were cool, and the Support Staff was amazing. It was only us that felt the worry and the time drag.

Elia’s Surgeon came out and met us in the waiting room to inform us that everything went exactly as expected and planned. He was able to make a small incision into her belly button, inflate her bladder, identify the remnant, tie it off at the bladder, remove the extra piece, and put her back together with steri-strips instead of stitches. The Anesthesiologist followed right at the 65/70 minute mark to tell us that Elia was already awake in the recovery area and was doing really well. We were then escorted back to be reunited, only to find her being loved and held by the nursing staff. I’m telling you – Children’s Colorado is freaking amazing.

The entire experience at the hospital – from check in to discharge – was just shy of six hours. Elia did really well, and spent most of the afternoon sleeping off the morning and the pain medication. From this point forward, there is only a follow up visit to ensure that the incision is healing appropriately…that’s it. This is something that once taken care of, will not be an issue in any way for her in the future.

And finally, finally, viral infections, respiratory illness, possible hip dysplasia, ultrasounds, and belly issues are behind us. Now, we get to focus on everything else that life gets to throw her way, and not on any lingering medical issues. It’s the first time in her life that this is the reality, and it is pretty freeing.

rocking an actual hospital gown

rocking an actual hospital gown

waiting, waiting, waiting

waiting, waiting, waiting

 

post surgery

post surgery


What People Did To Remember Liam

Last week we tossed out the idea and asked if you would help us remember Liam by doing an act of kindness in your part of the world….and honestly, we really didn’t quite know what sort of response to expect. I can tell you that even though we know that we are surrounded by a community of amazing people, I don’t think that either of us expected the outpouring that you gave to us, to Liam, and to others. As every single example was shared with us, we battled through tears to just finish reading the sentence. It was a stunning example of love and remembrance – and I’m not sure that we could ever thank you for that. During a day that was difficult for us, these stories were very uplifting.

There isn’t a good way to get a hard statistical breakdown on how many things were done, but I can tell you that literally from California and Washington to Massachusetts and Virginia, from Montana and Minnesota to Texas and Florida….and everywhere in between….we received stories of people doing things for others, donating time or money to amazing causes, giving of themselves to honor Liam, and introducing Liam and his story to new people.

I can assure you that every time we think about this year and about what happened – about how many people’s day/life was made a little better in memory of Liam – that our emotion will fall never short of ‘extremely loved.’

I’m always afraid of seeing or taking a good idea and it becoming overexposed and watered down, but I wonder about doing it again next year…

For now, we wanted to compile and share some of the stories that we received (we also know that the names below represent entire families). We know that many other acts occurred, and we thank all of you for your kindness.

“I just filled out the form to start the process [of volunteering at Children’s Colorado] 🙂 and since TCH has been so good to us (and to you), it just made sense! HAPPY BIRTHDAY LIAM!!”
– Anna

“We made a donation to Martha and Mary Ministries. We remembered Liam and his family in our prayers and in the prayer community of my college. And I spent the evening making candies and cookies to share because what little one doesn’t just love sweets!”
– Anonymous

“While checking my e-mail today I decided what I could do to honor both Liam’s birthday and the children who died in the Sandy Hook shooting. The Metrodome opens it’s concourse in the winter for inline skating; tomorrow they are donating all admission fees and any additional donations to the United Way to help those affected in Newton. So in honor of Liam and all the new playmates who recently joined him I will be skating laps at the Dome tomorrow and donating a dollar per mile with the goal of 26.2 miles. Happy Birthday Liam!”
-Jeff

“Hey Liam! Happy birthday buddy! Two things…first, one of Emma’s pals had a fire in his house, so in your memory, we’re going to donate a gift card to him and his family so they can buy new clothes and toys. We thought you’d think that was pretty cool! Second, we miss you and think about you all the time! Love you guys.”
-Adam

“Happy birthday Liam – a new baby, Andrew and his brothers and mommy are enjoying a week of dinners in honor of you.”
-Sarah

“A donation was made to the Red Cross in memory of Liam.”
-Tauno & Ashley

“In honor of Liam’s birthday I brought dinner to a young mom from my grad school whose husband is deployed. Thanks for giving us the opportunity to celebrate Liam in this way. We also donated a toy to Growing Home’s Christmas toy give away :)”
-Abby and Teva

“I showed this video in PRO today and challenged my students to also do a random act of kindness (we filled out “Caring Coupons”).”
-Jessica

“A donation was made to Friends of the Children – Portland”
-Christy

“We celebrate Liam’s life. We have donated to Children’s Hospital in his memory. We are so glad you felt so cared for during such a difficult time. Happy Birthday, Liam!”
-Ryan and Britta

“I have bought breakfast for the person behind me in the drive through…and paid fines for kids that I know simply won’t be able to come up with the money and then told them that an anonymous donor took care of it for them.”
-Kjerstin

“Pete and the big boys did shovel the snow and paid it forward by doing the neighbors too secretly! Happy Birthday sweet angel baby and his wonderful family!”
-Kathie

“In honor of Liam we purchased a birthday gift for a teenage boy at Children’s Home Society.”
-Cindy

“To celebrate Liam, I shared his story with my classmates and bought them a round of darts at the Ott House. It moved them and made them happy. Liam was part of our graduation celebration, and we send you love from Robbie (Missouri), Rusty (Maryland), me, Michael (Kansas), and Andrew (Indiana).”
-Kevin

“In honor of Liam, [we] made a donation to DC’s Homeless Playtime Project, a program that provides healthy snacks, one-on-one attention, games, arts and reading activities, outdoor recreation and conflict resolution twice weekly to the children of Turning Point Transitional Housing Program, DC General Emergency Family Shelter and weekly at DASH, Park Road Emergency Family Shelter, Griffin House and Valley Place.”
-Tim and Family

“While attending a holiday music class this morning at Foundations Music School, we dropped off a donation with the following note: “This donation is made in honor and in memory of Liam Bersagal-Briese in commemoration of what would have been his second birthday. We chose Foundations due to the family’s love of music. We can imagine Liam clanging and banging together a variety of instruments.” Per their website, “Foundation Music School is a non-profit community school of the arts committed to providing high quality arts opportunities to all individuals regardless of age, skill, ethnicity or income. Established in March 2006, Foundation Music School currently offers a range of classes for children of all ages and abilities which nurture the love of music in a developmentally appropriate way.””
-Brita

“In honor of Liam, I delivered some fudge to the nurses at Perry Street Pediatrics & plan to make some donations in his honor also. Thinking of all of you today.”
-Kendra

“I did get to help out the family I’m staying with by getting their boys breakfast and dressed for the day. And I’m hoping to give some kids extra love tonight while thinking of Liam much love to you all!”
-Heather

“In honor of Liam’s birthday: 2 pans of bars to the Salvation Army Christmas party, secret Santa gift for a neighbor who is alone, school fees and textbooks for kids as well as support for medical and dental care for kids through ELCA Good Gifts.”
-Dave and Mary Jo

“Hannah and I will pick out some food while we are shopping tomorrow to donate.”
-Mara

“In honor of Liam, I made a donation to the World Vision Orphan Fund today.”
-Lyn

“Showering my little corner of the world with RAOKs in your honor today.”
-Chimwemwe

“I held a Toys for Tots fundraiser party on Saturday. Went and dropped off 18 toys today.”
-Lindsay

“I gave him a dollar because he didn’t look old enough for the senior coffee he was planning to ask for. I also gave him the rest of a coupon book we had bought for Lexy at Halloween with coupons for free apples, hamburger and milk. He looked at it and said “Halloween” and then “Oh, it’s still good!” with a big smile. Then his female friend came in, staring daggers at everyone and hanging onto half a roasted chicken from the Safeway as if it were gold. The guy next to us gave her a dollar for a drink. I bought them each a “big mac” with a two for one coupon and told them Merry Christmas. As we left I saw her waving at me with a shy smile and a very quiet “thank you”. She was pretty then as she didn’t seem to be before. Maybe Liam was watching over them as it was only a couple of blocks from where Oren grew up and most likely ate.”
-Dani

“Today, we are mailing a check to the Blinded Veterans’ Association in Washington, DC.”
-Dave and Betty

“I chose the gift of time because it’s one thing my children treasure most. I came home from work and without doing anything else….I sat down and listened & shared my family’s day one-by-one and shared a special treat with them that showed “I know what you like. I know you & love you.””
-Wanetta

Guys on duty at the department sent this over for Liam..."Happy Birthday from the Frozen Four."

Guys on duty (Thomas, Cameron, Matt, and Jeff) at the department sent this over for Liam…”Happy Birthday from the Frozen Four.”

A friend from high school left this note for someone random, and introduced Liam to someone for the first time.

A friend from high school (Carin) left this note for someone random, and introduced Liam to someone for the first time.

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A brother from South Metro Fire sent this photo from his class at the National Fire Academy in Maryland. It has folks from all over the country - also meeting Liam for the first time.

A brother from South Metro Fire sent this photo from his class at the National Fire Academy in Maryland. It has folks from all over the country – also meeting Liam for the first time.

Scarves made for some students in South Dakota by the Smith family.

Scarves made for some students in South Dakota by the Smith family.

2 Months!

2Months

54 Months!

4.5 years old?

We are going to do our best to bust this study: When Do Babies Stop Being Cute? 4 1/2, Scientists Say

54months

Elia Smiles

Sitting squarely on the never ending list of things to do is a note about uploading photos. Somehow, this has not been done in the speed at which I would like, but I just couldn’t sit on this picture any longer. It had to be shared.

elia smiles-1

Halloween 2012

Woody has entered the building. I’m amazed at how, after an original stint with one of Ezra’s cousins, a $20 costume has survived two households, a year of occasional dressing up, and a Halloween season that included time at a school party, the actual evening, and an additional wearing for a special event at the Denver Center for Performing Arts….only to be returned to the costume bin in the playroom for more abuse. It’s not often that outfits with this sort of niche find such travel success, but this one is going to be hard to top. Compare that to Elia’s best ladybug outfit, which while it was extremely cute, is already essentially too small for any further wear.

PS – The Family Fun Forum at the Denver Center is awesome. Ezra had the chance to walk a balance beam while jumping through a hoop, he swung around on a trapeze, acted on TV, made scary noises, had a choreographed sword fight, learned about the Day of the Dead, and got to interact with students/actors at the Center. All of this without the influence of Dad’s camera. Eh.

PPS – Scary lady (husband not pictured) and her house is the neighbor down the street. They set up an amazing Halloween display and scared the neighborhood kids all evening long.

 

53 Months!

 

Back In Time, Virginia Style

Way back in August, I took the opportunity to jet to Virginia for a very quick trip to visit friends and Jonathan. It had been somewhere in the neighborhood of three years since I had the chance to spend any time in the area, so I was thankful to have the stars align right to be able to see some close friends.

Right off of the plane, into horrible DC area traffic, to Alex’s house, and off to Harper’s Ferry, WV for a really cool hike. I was quickly reminded of the amazing friendship that I miss on a more frequent basis, as well as the amazing amount of humidity that I equally don’t miss in the least. The hike was a couple of miles up to a lookout rock that provided awesome views of the city of Harper’s Ferry. After the hike, we went into town and enjoyed a beer at a super cool pub called the Secret Six Tavern – named for the men who conspired with John Brown.

While there, I had the chance to catch up with a friend that I hadn’t seen since high school (!) and meet her beautiful family, explore the area where I grew up, visit Jonathan as well as Section 60 at Arlington (where they are burying the dead from Iraq/Afghanistan), visit Gil and family, and spend a touch of time reminiscing by myself. It was perfect.

A Visit With Thomas

Are there still children in this middle class world that aren’t in love with Thomas? Or at least aren’t romanticized by large, old trains? Certainly not in our house, and a little while back, Ezra had the chance to go and meet his cartoon obsession in person.

Thomas the Tank Engine, along with a few other characters, and all the commercialism came for their annual visit to the Colorado Train Museum. It turns out to be quite the orchestrated, mass visited event, but the climax of the trip is a chance to ride on a train pulled by Thomas. Us, a couple of Ezra’s best friends (parents included) and a few hundred other friends made the loop around the train yard a few times before being put back onto the museum grounds.

Even though the marketing component of the traveling circus is extremely large, it was a lot of fun to be immersed into Sodor and the train museum – which is pretty super cool. It was great fun to be able to share the experience with some seasoned veterans of the Thomas ride, and I’m not entirely sure that we will be able to miss it next year.

Aspens 2012, Some Photos

Lucky to live in Colorado.
Lucky to be able to spend some time each year visiting with some of the most unique and beautiful trees in the world.
Lucky to have great friends to share it with.