A Poem

We have had the fortunate experience of meeting some new friends through very unfortunate circumstances. This couple that we found through the magic of story sharing over blogs went through a very similar experience with their son – Brice – that we did at about the same time. We’ve never met them in person, but due to shared experience there is a deep sense of understanding. Brice’s mother recently shared this poem that I thought was pretty spot-on.

Go ahead and mention my child,
The one that died, you know.
Don’t worry about hurting me further.
The depth of my pain doesn’t show.
Don’t worry about making me cry.
I’m already crying inside.
Help me to heal by releasing the tears that I try to hide.
I’m hurt when you just keep silent, pretending he didn’t exist.
I’d rather you mention my child,
Knowing that he has been missed.
You asked me how I was doing,
I say “pretty good” or “fine.”
But healing is something ongoing.
I feel it will take a lifetime.
–By Elizabeth Dent

360 Degrees

About a month before Ahna and I ever met, I had the opportunity to see U2 in Denver at the Pepsi Center in what was one of the greatest rock shows I have ever seen. So it didn’t take long for it to come up in our early conversations as we learned more and more about each other…and it didn’t take much longer than that for Ahna to express her wishes to see them the next time they came to town.

Fast-forward to November of 2009 when it was announced that they would be having a stop at Mile High Stadium as part of their 360 Tour. I changed schedule and re-arrange the bank accounts to make sure that I was sitting at the computer at precisely 10am on the morning that the tickets went on sale. We were rewarded with field tickets to what was sure to be a great show just a few months away. Now’s a good time to admit that we are both huge U2 fans, and each proclaim to have a song or two of theirs in our top-10 lists. So it was with much anticipation that we awaited June of last summer to roll around. As it got closer, U2 seemed to find more air time on our iPods as we certainly wanted to be as up-to-speed on the music as possible (there’s a lot of prep that goes into seeing a concert sometimes). But, our balloon was burst when we turned on the news one morning to see that Bono had hurt his back at a show in Germany and U2 was going to have to reschedule the rest of that leg of the tour. Bummer.

I can’t remember exactly when they announced the new date for the show, as insignificant details of the last six months have found their way out of my mind; but I can tell you that when we heard about it, we were excited. So, last weekend was the culmination of years of wait and nearly two years of ticket holding. This time around, the anticipation level was a lot more muted than last summer, but we made a night out of it…gave Ezra over to my parents, had dinner with some good friends from the hospital, enjoyed an amazing show, and spent the night at a hotel downtown.

There are plenty of places to hear about the stage set-up for the show (huge, cool, trippy) so we won’t go into how it takes four days to build and two days to disassemble. There are also plenty of places to hear about the set list that they debuted for the Denver show (and they played each of our favorite songs – All I Want Is You and Zooropa…both very rare) so we won’t go into how fun it was to hear music that spanned their entire existence but focused on their albums from the 90s. There are also plenty of places to hear about how loud and loud the shows have been (it was actually to the point of pain several times) so we won’t go into how we contemplated stepping out of the show just to let our ears relax for a minute only to stay inside in fear of missing a part of the show that we have waited so long to see.

But, I will bring up what was one of the highlights of the evening – because it produced one of the most striking images I have ever seen. They sang a song titled ‘Miss Saravejo’ which comes from the b-side of their greatest hits; and one that they sung under a pseudonym and with some random guy named Pavarotti. It’s a beautifully written and performed song inspired by the Serbian-Bosnian war from the 90s (Bono sung the operatic part). During the show, they had video and still images from the 1993 Miss Saravejo contest, and the still shot that you see below has turned into an image that I don’t think I’ll ever forget. There is so much depth in the photo, that there is little hope of ever trying to explain it…so I just look at it, and hope that we find a way to never let anything like that happen again.

The show was everything that we hoped it would be: we laughed, we cried, we sang out loud and danced till we couldn’t anymore. It was great to catch up with a very special set of people, and it will certainly go down as a concert to remember.

Team Lazy And Guilted

In the middle of living the very sedentary lifestyle of the NICU, Ahna and I had an idea to help us be motivated to move more once we were no longer there all the time: to run in the Colfax Marathon…and since taking a couple of people who generally try to avoid running distances over a few feet towards running a full marathon is a feat that even NASA couldn’t accomplish in just a few weeks, we opted to sign up for the marathon relay.

This of course posed problem number 2: getting others to do it with us. We solved this problem in the only way that seemed reasonable at the time; no, not by graciously asking people that we thought would be natural fits, but by telling people that we thought would be more like our lack-of-running-selves. Interestingly enough, we were able to find a few other couples to fill out two teams, and the folks jumped right on being apart of the relay. When we had our team lunch/party, we came up with a name that we all thought suited the style of running and overall motivation: Team Lazy And Guilted.

We signed up as two teams of five people, so each person could run with their partner (there were three couples, one mother and daughter, and one set of friends that was due to one of the guys getting hurt just a few days prior to the race) and dedicated our monies towards The Children’s Hospital Foundation in memory of Liam. Whatever training could be done was, and each of us braced ourselves for our 10K or 5K leg of the race. It’s a great run because it goes right through downtown Denver and back creating a lot of things to look at…but I suppose that no matter where you go, if you go 26+ miles, you bound to have a lot of things to look at.

This past Sunday morning was the race, and Tracy and Olivia kicked it off nice and early in the cold and mist. Ahna and I followed with leg 2, a 10K run through downtown Denver and through several miles of cold and rain. We passed off to Jay and Karen who ran a mostly uphill leg out towards Edgewater, and they met up with Tallie and Melissa who came hauling back to Invesco Field. Mark and Kendra got the joy of finishing the race back into City Park, and we all met with them just before the finish line to run across together.

We did learn a few things from the race: cold and wet means cold and wet, but it’s not bad running weather. No matter your previous running experience, you can push through either a 5 or 10K when you set your mind to it. Running through a city is a lot better than running on a treadmill. You can still be super sore two plus days after the event. A long run in the early morning equals a nice nap in the afternoon. The first few sips of a free beer are awesome, the remaining amount is disgusting. The combination of lime Gatorade and banana is surprisingly awful. Finishing your leg of a larger race is extremely rewarding. Running a combined 52.4 miles in memory of Liam is stunningly emotional. And finally, running it all with some great friends is an unbelievable experience.

We’re all (except for Tracy and Olivia that are moving) are in for next year. We are going to be looking for a couple of new folks, and maybe if there is enough interest, we can do another team. A big thanks to Adam, who after tearing his quad muscle in a house fire earlier in the week, was able to come out and be our official team photographer.

And….We’re Back

Wow, it’s been a while! Thanks for the break, and for not knocking down our digital door demanding more posts while we took some time to slow the typing roll. A few weeks have passed since we last saw each other with fresh stuff, and for that we are somewhat apologetic…but truth be told, it’s been a welcome renewal. We have had lots of up days, lots of down days, and a few sideways days; but as things go, we are dealing with each day as it comes.

This is going to serve as a catch-up post, then we’ll hopefully be back to regularly spaced updates…so let’s go:

Ezra had his last day at Peggy’s house (as detailed in the last post). It was a day of a lot of fun and a lot of tears, that for us quickly led to a near immediate need to refocus on his first day at his new joint. The new place is even closer to school, and is also an in-home center that a couple of kids from Peggy’s transferred to as well. So there is a new home, new friends, and a few familiar faces. So far Ezra has been there a few days and seems to be adjusting really well and having a great time. It’s a big relief to know that he’s in a good place and is having fun.

Just a few days after the emotional last day at Peggy’s was the emotional day that was Mother’s Day. I’ve debated how much to write about this day, and eventually decided on just including a few words here. We tried really hard to focus on good/positive things, but there was simply no way possible to go more than 15 seconds without thinking about Liam. It was a really hard day for us both, although we were able to have a good time spending the day as the three of us. We went that morning to Breakfast at the Zoo, which was a lot of fun. We had a good meal, and were able walk around the place without too many other people around. Without going into everything that Ezra and I wrote in Ahna’s card, it has to be said and repeated here that Ahna is an amazing Mother of two beautiful children. Ezra, Liam, and I have been so lucky to have her in our lives.

Ezra slept a bunch as he has been fighting a cold/temp/laryngitis….

And the ladder truck has been on a few fires…although I wasn’t on this one. I’ve gotten to attend, but this one was done while I was at training so I didn’t get to go. It gets a place here on the blog because a) it’s a good picture, and b) there is a great story about what is happening at this exact minute that will have to be shared face to face.

Oh, and here is a closing random photo.

An Ending And An Opportunity

Today marks the last day that Ezra will go to Peggy’s house for daycare. You see, a few weeks ago, Peggy let us know that an opportunity had popped up for her that would take her into a full-time position and away from doing daycare any longer (she’s been at it for a really long time – like almost two decades).

This is a really sad moment for us for two reasons. The first is because Ezra is again faced with a major change to his life that he has absolutely no control over. It’s tough to think that the one thing that has been stable for him over the past 2.5 years is now going to be different…but we’re hopeful that he will be able to cope with the change and the new place as well as he has coped with everything else over the past few months. The second reason that this is really sad is because Peggy is an amazing person, and we are bummed that she won’t be part of our daily lives in the ways that she has been.

It’s an interesting dynamic to hand your child over to someone else, then walk away and feel completely safe and comfortable with it….and that’s something that we felt from day one with Peggy. For two years, we would take Ezra to her house twice a week and he would return rested (mostly) and happy as can be. Way more mornings than not, once we arrived at Peggy’s house Ezra would go running towards her with little regard for those of us dropping him off – that’s a really good thing. And on lots of occasions, I would inquire with Ezra about what he wanted to do for the day that we were together and he would reply with ‘go to Peggy’s house.’ She was flexible to our needs, worked with our schedules, and always greeted us with a hug smile. As a parent, there are few things in life that can make you happier than your child being happy…and Peggy has had a lot to do with that.

So that brings us to a few months ago when Liam was born. As we found ourselves living in the hospital and our parents now in charge of Ezra each day, we looked to Peggy to be able to provide some relief; and she did a whole lot more than that (I am actually tearing up as I write this thinking about how wonderful she has been to us). She contacted us almost immediately to let us know that she was ready and willing to do anything for us and anything for Ezra that we needed. We could bring him to her house every day if we wanted – and she wasn’t going to charge us a dime while we were still in the hospital. She wanted us to be able to focus on being there and not to have to worry about Ezra: which is an amazing gift. She sent a few care packages our way (with a lot of help from the other daycare parents), filled with things that would help us pass the time, filled with things that would taste a lot better than the cafeteria food, and filled with things for Ezra. Once we got home from the hospital, she had another care package that she and the parents put together filled with things for us to do as a family. Ezra went to her house once or twice a week for more than two months while we were with Liam, and those were days that we never had to worry one second about what he was up to.

So now Peggy gets to clean out her house of many years of toys, and she gets to paint the house with no worry that a bunch of kids are going to scuff it all up, and she gets to go to work with a bunch of people that are more her age than they are not (I guarantee nothing about maturity level, though). Ezra now has the opportunity to meet some new friends and hang out at a new house…and Ahna and I get the opportunity to say “Thank you Peggy! We love you for everything that you are and for everything that you have done for us. We will miss you!”

What A Gift

At 2.5 (almost 3) years old, Ezra has seen a lot and been through a lot and shown great maturity through it all. But despite all of the ups and downs that life has offered to him, it’s still hard for me to imagine that he is already doing the same thing that I am doing – and he was able to start doing it some 28 years sooner….he is now driving his own ladder truck.

A few nights ago while at work, Ahna and Ezra stopped by on their way home from the airport. It was a nice visit and certainly gave me my family fix in the middle of the long shift at work; then things got interesting. In a pre-arranged surprise, a great friend and fellow firefighter – CJ – showed up and shocked us with an amazing gift for Ezra. It seems that over the past several months, CJ and a few others have been conspiring behind closed doors to create a fire truck that Ezra will be able to have and to play with; built in memory of Liam.

CJ, Tony, Brett, Ron, Carl, Ryan, Scott, Jenn, Sabrina, Stacey, Emily, John, and Amy all contributed to this amazing project. They started with a toy-pedal fire truck, and left the ‘stock’ world from there. The truck was disassembled and rebuilt using complete custom parts – all meticulously thought out and crafted. And as an amazing tribute to the fire service family, a lot of the people involved don’t even know us, they just know of us. According to CJ, once word spread about the project, people immediately offered their expertise and time to help create the truck. Wow.

For a tour of the customization (starting at the front, driver’s side): all of the paint is hand done and completely custom, including copper leaf and pin striping. The paint on the hood air vents is designed to resemble a pike pole. Then the bell was a complete custom job and added to the truck (the original came on top of the hood and was not brass). The wooden backboard was hand made and includes custom engraving (the logo-ed backboard is a Denver FD tradition that I love on this truck because it is a great reminder of who helped with the truck). On the back of the truck are two special made metal etched/cut outs that speak directly to what the truck is all about: Brotherhood and Never Forget. In the back of the truck, you will find some examples of tools on every ladder company like a salvage cover, a hall runner, and some rope. The extension ladder was completely hand made and is fully functioning, as is the pike pole directly above it. The original truck didn’t have a siren on it, so the guys made sure to fix that by finding, ordering, and adding an electronic siren that is wired to work from the dash. Also from the dash, you will find the control for the working lights. The final touch is the most striking: ghost images on the hood. You can only see these in certain lights and only from certain angles, but there are hod-rod style flames, and Liam’s name.

It is obvious from the moment that you set eyes on this truck that it is an extremely unique gift that was made with a tremendous amount of love – which is why I was speechless when we were surprised by it, and I get teary eyed when I share about it with other people.

There is one additional chapter to this amazing story…the photos that you see below. Before the truck was turned over to Ezra to play with (which is what the folks that built it asked for – because I wanted to put it in a display case), I wanted to take some good pictures of it. So I contacted a photography studio that is here in Castle Rock and they were receptive to the idea. Ezra and I went there this morning and had an amazing experience with them, and ended up with some amazing photos. The folks at Forever Yours Photography not only opened up their space to us, they walked me through a studio photo session step-by-step….all as a donation to someone in their community.

So here are the photos that despite how awesome they actually are (joke), could never show how awesome the truck actually is. This is another gift that we have no way of ever being able to say thank you enough, so we will instead smile and think of Liam every time that Ezra drives his very own custom ladder truck.

How Many Kids Do You Have?

I’m of the opinion that there is an upside down bell curve as it relates to the number of people – and therefore questions – that we are facing whom don’t know our story. It goes something like this: as we were in the hospital and immediately afterwards, we were only surrounded by close friends/family and our story was only shared through face-to-face conversation or this blog…essentially everyone that we dealt with knew what was going on. As the days went by and we were forced back into life, we started to go to more publicly exposed places (ie: parks, grocery store, work, etc) and ran into a few people that we loosely knew through various past ventures that didn’t know what had happened; and even a few of them knew that we were expecting, but didn’t know the outcome. So we started to have to have uncomfortable, somewhat superficial conversations with people that we rarely see…because we just aren’t going to lie about it. And deflating someone’s day with such sad news isn’t a fun thing to do.

As a little more time has passed, it seems like we have now run into just about everyone that we are going to see on a regular basis, hold a few exceptions. Most notably are family members that know the story, but we just haven’t seen in person yet due to distance. These are encounters that we are just going to have to deal with as they come – but they are anticipated. The other notable exception is people that are so loosely affiliated with us that they know us by circumstance, but don’t know anything about us….like the person that gives me a haircut, amongst others (side note because I know a few of you are already thinking it: yes, I go and get my head shaved somewhere and yes, I could do it at home….but there is a business here in town that is a tremendous supporter of the fire department, so I decide to support them).

As I sat in the chair yesterday morning, the usual simple banter started….How are you doing today? (PS – when you answer this questions even remotely honestly – ‘ok’ – you get several follow up questions of disbelief and attempted resolution) Are you sure your just ok? What are you up to today? Don’t have to be at work?….then the inevitable begins, and it goes down a road that you just can’t stop no matter how hard you are pulling on the brakes….You have a kid right? How old is he? Does he have any brothers/sisters? Are you going to have anymore?

These are all innocent enough questions, and assuredly safe enough to ask 99% of the time. But being in our shoes on this end of the question, it’s a tough spot to be in. Due to the extent of relationship (or lack thereof) and what was mentioned earlier about not having a lot of fun ruining someone’s day, I have now come to a place where I answer them as bluntly and simply as possible. How many kids do you have? One. Are you going to have anymore? I don’t know. No drawn out tales of the past several months. No in depth explanation why I am ‘only ok.’ Tears and stomach butterflies being repressed with all available resources.

The difficulty is that we don’t know when or where they are going to come from. Going out to get a simple 10 minute haircut and tripping into a world of emotion is stomach churning each time. Of course neither of us hold anything against anyone who asks these questions to us….to start, they care enough to even ask. We both know that we are likely going to encounter these types of conversations for a long while to come, and some variant of these conversations for the rest of our lives. I suppose that on some level, they are forcing us to confront what has happened in a visible way…and they are forcing us to think about Liam – which no matter how difficult it may be, isn’t bad at all.

It’s Too Easy

Yea, that’s actually what it says: it’s too easy…and herein lies the rub.

It’s been two months, as of today, since we last held Liam; and that hurts a lot. Two months ago we sat at the hospital and had our lives irreversibly changed in a way that we didn’t want them to be changed. We left the hospital with a feeling of sadness and loss that has only gotten more intense, and we haven’t been back. There are moments, even hours, that go by and Liam isn’t at the forefront of each and every thought; and we hate that. And the normal activities in our day-to-day lives are all to simple and easy. And it’s in that simplicity that we are constantly reminded of what we don’t have.

Take yesterday for example…just like any other randomly selected day in our current lives. We woke, made some breakfast, and watched a little TV. We decided that we would go for a walk/run and loaded the car – with a stroller for one. After that, I went and ran a few errands by myself and Ahna and Ezra played outside before heading to the grocery store. All of that done without worry or concern for a baby’s feeding and napping schedule. In the evening we went down to my parent’s house for Passover Seder, and enjoyed a wonderful meal well into the evening without a glimmer of a crying or needy baby in sight. Trust me when I tell you that’s its just has hard to write this down as it is to live it. It shouldn’t be this simple. It really sucks.

It’s a heavy-hearted day. We miss Liam.

Just Below The Surface

I’m not sure that there is any way to ever get around the fact that it’s just always there. It doesn’t take much encouragement to get it to bubble over and become evident to all; and it doesn’t always have a timeline as to how long it wants to stay above everything else. What is it? It’s the sadness, the sickness, the stomach turning, the emptiness, the questions, the lost hopes, and the wanted expectations.

As Ahna and I both conclude our first full and complete weeks back to work, I think that we can both attest to the idea that even over the course of just a few days, being there has gotten a little easier – whatever that means. Easier isn’t the right word to describe it, but there really isn’t another word that works as well. As the days go by at work, it’s a lot like loosing that sense of newness when you get that long awaited thing: it just becomes the normal instead of something that you are trying to figure out. But it’s always just below the surface.

Recently I was at work and sat through a lecture on thoracic anatomy and physiology and found myself struggling as I thought about Liam. There wasn’t any direct correlation, but as we are both discovering, it really doesn’t take a direct connection. As a matter of fact, it doesn’t take a connection at all….it just happens.  We walk around kind of propped up by life, but weighed down by experience and ready to burst at the seams at any random time and place. Containing it is a necessary evil at times, but we have been able to find the ability to express in each other our feelings when we need to the most. But it’s always just below the surface.

Wristband Update

Wow…it’s almost been a week since the last post. There’s a blog detox of sort happening right now – or we’ve actually just been really busy and haven’t found the time to be able to share any of it with you till today.

The ‘biggest’ event of the past few days is the beginning of potty training for Ezra. It’s big enough that I think I’m going to write a special post all for itself.

While Ahna was neck deep in the potty training, I spent the later part of last week in Indianapolis at FDIC (a conference for firefighters) helping to run a stair climb. A group of five of us went out there and organized and ran the first 9/11 Memorial Stair Climb at the conference. It’s very similar to the one that I help with here, except for the two obvious differences: 1) it wasn’t on 9/11 and 2) it wasn’t in a building (it was instead held inside of Lucas Oil Stadium). It was very successful, and we have settled on doing another one at a conference in Baltimore at the end of July. These climbs will go a long way in helping us towards the goal of having 100 climbs happening on 9/11 for the 10th anniversary this year.

New topic: through a friend, we learned of an organization called The Rowan Tree Foundation. It’s a group that helps parents that have suffered through and with the loss of a child. Truth be told, it completely sucks to have to learn about organizations like this one….but here we are anyway. The Rowan Tree Foundation helps people across the country, but it’s actually headquartered here in Parker. We have been in touch with them and are only now beginning to find out about some of the resources that they bring to the table – which I think will be great to know about. Anyhow, the folks there had read the blog and offered up a wristband that they have for the foundation. It’s a perfect something to wear while we are searching for the perfect something to wear (ps – thanks for all of the suggestions…I think that we’re close to getting something).