New Wristbands

Well, after much consideration (possibly too much), a decent amount of thought, a lot of recommendations, and finally a much anticipated delivery; we have gotten our new wristbands. We have previously written about the wristbands and what they meant to us here and here, and then about the interim ones here.

We spent a lot of time perusing the internet looking for ‘that perfect one’ only to not want to get committed. The funny thing about it is that we know that even these wristbands won’t last forever, and if we don’t like them we can keep looking….but since they are something that we are going to be wearing all of the time, it was something that we really wanted to get right. And I think that we found the right ones (at least for now) at a place called The Vintage Pearl. The Vintage Pearl allows customization on size, font, and wording…as long as it fits within a certain character count – which leads to a whole different consideration about what to write. I settled on a leather band, and Ahna got a really nice bracelet and necklace.

They arrived while we were on vacation in the midwest, and once we got them on, we were really happy with them. They have been a nice permanent fixture, and have already become conversation pieces – leading Liam to be thought of and remembered by even more people.

Father’s Day

No sense in lying about anything here….Father’s Day was a day that was full of turn-it-on/turn-it-off emotions: very up and down. I was treated to a wonderful breakfast meal of pancakes made lovingly by Ahna and Ezra in unison. Ezra did a great job helping to measure, pour, and mix before retiring to eat some of the first batch that came off the griddle. We spend the rest of the morning with my Dad working on putting together a swing set down at their house for Ezra to use (it was given to us by some great friends when they were done with it). There was a really tough stretch about mid-afternoon when I spent a lot of time thinking about Liam, but I was graciously helped through it by Ezra (with some Ahna love in there too). Ahna and Ezra made it really special, although it was a lot tougher that I even thought that it was going to be.

A Poem

We have had the fortunate experience of meeting some new friends through very unfortunate circumstances. This couple that we found through the magic of story sharing over blogs went through a very similar experience with their son – Brice – that we did at about the same time. We’ve never met them in person, but due to shared experience there is a deep sense of understanding. Brice’s mother recently shared this poem that I thought was pretty spot-on.

Go ahead and mention my child,
The one that died, you know.
Don’t worry about hurting me further.
The depth of my pain doesn’t show.
Don’t worry about making me cry.
I’m already crying inside.
Help me to heal by releasing the tears that I try to hide.
I’m hurt when you just keep silent, pretending he didn’t exist.
I’d rather you mention my child,
Knowing that he has been missed.
You asked me how I was doing,
I say “pretty good” or “fine.”
But healing is something ongoing.
I feel it will take a lifetime.
–By Elizabeth Dent

Team Lazy And Guilted

In the middle of living the very sedentary lifestyle of the NICU, Ahna and I had an idea to help us be motivated to move more once we were no longer there all the time: to run in the Colfax Marathon…and since taking a couple of people who generally try to avoid running distances over a few feet towards running a full marathon is a feat that even NASA couldn’t accomplish in just a few weeks, we opted to sign up for the marathon relay.

This of course posed problem number 2: getting others to do it with us. We solved this problem in the only way that seemed reasonable at the time; no, not by graciously asking people that we thought would be natural fits, but by telling people that we thought would be more like our lack-of-running-selves. Interestingly enough, we were able to find a few other couples to fill out two teams, and the folks jumped right on being apart of the relay. When we had our team lunch/party, we came up with a name that we all thought suited the style of running and overall motivation: Team Lazy And Guilted.

We signed up as two teams of five people, so each person could run with their partner (there were three couples, one mother and daughter, and one set of friends that was due to one of the guys getting hurt just a few days prior to the race) and dedicated our monies towards The Children’s Hospital Foundation in memory of Liam. Whatever training could be done was, and each of us braced ourselves for our 10K or 5K leg of the race. It’s a great run because it goes right through downtown Denver and back creating a lot of things to look at…but I suppose that no matter where you go, if you go 26+ miles, you bound to have a lot of things to look at.

This past Sunday morning was the race, and Tracy and Olivia kicked it off nice and early in the cold and mist. Ahna and I followed with leg 2, a 10K run through downtown Denver and through several miles of cold and rain. We passed off to Jay and Karen who ran a mostly uphill leg out towards Edgewater, and they met up with Tallie and Melissa who came hauling back to Invesco Field. Mark and Kendra got the joy of finishing the race back into City Park, and we all met with them just before the finish line to run across together.

We did learn a few things from the race: cold and wet means cold and wet, but it’s not bad running weather. No matter your previous running experience, you can push through either a 5 or 10K when you set your mind to it. Running through a city is a lot better than running on a treadmill. You can still be super sore two plus days after the event. A long run in the early morning equals a nice nap in the afternoon. The first few sips of a free beer are awesome, the remaining amount is disgusting. The combination of lime Gatorade and banana is surprisingly awful. Finishing your leg of a larger race is extremely rewarding. Running a combined 52.4 miles in memory of Liam is stunningly emotional. And finally, running it all with some great friends is an unbelievable experience.

We’re all (except for Tracy and Olivia that are moving) are in for next year. We are going to be looking for a couple of new folks, and maybe if there is enough interest, we can do another team. A big thanks to Adam, who after tearing his quad muscle in a house fire earlier in the week, was able to come out and be our official team photographer.

And….We’re Back

Wow, it’s been a while! Thanks for the break, and for not knocking down our digital door demanding more posts while we took some time to slow the typing roll. A few weeks have passed since we last saw each other with fresh stuff, and for that we are somewhat apologetic…but truth be told, it’s been a welcome renewal. We have had lots of up days, lots of down days, and a few sideways days; but as things go, we are dealing with each day as it comes.

This is going to serve as a catch-up post, then we’ll hopefully be back to regularly spaced updates…so let’s go:

Ezra had his last day at Peggy’s house (as detailed in the last post). It was a day of a lot of fun and a lot of tears, that for us quickly led to a near immediate need to refocus on his first day at his new joint. The new place is even closer to school, and is also an in-home center that a couple of kids from Peggy’s transferred to as well. So there is a new home, new friends, and a few familiar faces. So far Ezra has been there a few days and seems to be adjusting really well and having a great time. It’s a big relief to know that he’s in a good place and is having fun.

Just a few days after the emotional last day at Peggy’s was the emotional day that was Mother’s Day. I’ve debated how much to write about this day, and eventually decided on just including a few words here. We tried really hard to focus on good/positive things, but there was simply no way possible to go more than 15 seconds without thinking about Liam. It was a really hard day for us both, although we were able to have a good time spending the day as the three of us. We went that morning to Breakfast at the Zoo, which was a lot of fun. We had a good meal, and were able walk around the place without too many other people around. Without going into everything that Ezra and I wrote in Ahna’s card, it has to be said and repeated here that Ahna is an amazing Mother of two beautiful children. Ezra, Liam, and I have been so lucky to have her in our lives.

Ezra slept a bunch as he has been fighting a cold/temp/laryngitis….

And the ladder truck has been on a few fires…although I wasn’t on this one. I’ve gotten to attend, but this one was done while I was at training so I didn’t get to go. It gets a place here on the blog because a) it’s a good picture, and b) there is a great story about what is happening at this exact minute that will have to be shared face to face.

Oh, and here is a closing random photo.

An Ending And An Opportunity

Today marks the last day that Ezra will go to Peggy’s house for daycare. You see, a few weeks ago, Peggy let us know that an opportunity had popped up for her that would take her into a full-time position and away from doing daycare any longer (she’s been at it for a really long time – like almost two decades).

This is a really sad moment for us for two reasons. The first is because Ezra is again faced with a major change to his life that he has absolutely no control over. It’s tough to think that the one thing that has been stable for him over the past 2.5 years is now going to be different…but we’re hopeful that he will be able to cope with the change and the new place as well as he has coped with everything else over the past few months. The second reason that this is really sad is because Peggy is an amazing person, and we are bummed that she won’t be part of our daily lives in the ways that she has been.

It’s an interesting dynamic to hand your child over to someone else, then walk away and feel completely safe and comfortable with it….and that’s something that we felt from day one with Peggy. For two years, we would take Ezra to her house twice a week and he would return rested (mostly) and happy as can be. Way more mornings than not, once we arrived at Peggy’s house Ezra would go running towards her with little regard for those of us dropping him off – that’s a really good thing. And on lots of occasions, I would inquire with Ezra about what he wanted to do for the day that we were together and he would reply with ‘go to Peggy’s house.’ She was flexible to our needs, worked with our schedules, and always greeted us with a hug smile. As a parent, there are few things in life that can make you happier than your child being happy…and Peggy has had a lot to do with that.

So that brings us to a few months ago when Liam was born. As we found ourselves living in the hospital and our parents now in charge of Ezra each day, we looked to Peggy to be able to provide some relief; and she did a whole lot more than that (I am actually tearing up as I write this thinking about how wonderful she has been to us). She contacted us almost immediately to let us know that she was ready and willing to do anything for us and anything for Ezra that we needed. We could bring him to her house every day if we wanted – and she wasn’t going to charge us a dime while we were still in the hospital. She wanted us to be able to focus on being there and not to have to worry about Ezra: which is an amazing gift. She sent a few care packages our way (with a lot of help from the other daycare parents), filled with things that would help us pass the time, filled with things that would taste a lot better than the cafeteria food, and filled with things for Ezra. Once we got home from the hospital, she had another care package that she and the parents put together filled with things for us to do as a family. Ezra went to her house once or twice a week for more than two months while we were with Liam, and those were days that we never had to worry one second about what he was up to.

So now Peggy gets to clean out her house of many years of toys, and she gets to paint the house with no worry that a bunch of kids are going to scuff it all up, and she gets to go to work with a bunch of people that are more her age than they are not (I guarantee nothing about maturity level, though). Ezra now has the opportunity to meet some new friends and hang out at a new house…and Ahna and I get the opportunity to say “Thank you Peggy! We love you for everything that you are and for everything that you have done for us. We will miss you!”

What A Gift

At 2.5 (almost 3) years old, Ezra has seen a lot and been through a lot and shown great maturity through it all. But despite all of the ups and downs that life has offered to him, it’s still hard for me to imagine that he is already doing the same thing that I am doing – and he was able to start doing it some 28 years sooner….he is now driving his own ladder truck.

A few nights ago while at work, Ahna and Ezra stopped by on their way home from the airport. It was a nice visit and certainly gave me my family fix in the middle of the long shift at work; then things got interesting. In a pre-arranged surprise, a great friend and fellow firefighter – CJ – showed up and shocked us with an amazing gift for Ezra. It seems that over the past several months, CJ and a few others have been conspiring behind closed doors to create a fire truck that Ezra will be able to have and to play with; built in memory of Liam.

CJ, Tony, Brett, Ron, Carl, Ryan, Scott, Jenn, Sabrina, Stacey, Emily, John, and Amy all contributed to this amazing project. They started with a toy-pedal fire truck, and left the ‘stock’ world from there. The truck was disassembled and rebuilt using complete custom parts – all meticulously thought out and crafted. And as an amazing tribute to the fire service family, a lot of the people involved don’t even know us, they just know of us. According to CJ, once word spread about the project, people immediately offered their expertise and time to help create the truck. Wow.

For a tour of the customization (starting at the front, driver’s side): all of the paint is hand done and completely custom, including copper leaf and pin striping. The paint on the hood air vents is designed to resemble a pike pole. Then the bell was a complete custom job and added to the truck (the original came on top of the hood and was not brass). The wooden backboard was hand made and includes custom engraving (the logo-ed backboard is a Denver FD tradition that I love on this truck because it is a great reminder of who helped with the truck). On the back of the truck are two special made metal etched/cut outs that speak directly to what the truck is all about: Brotherhood and Never Forget. In the back of the truck, you will find some examples of tools on every ladder company like a salvage cover, a hall runner, and some rope. The extension ladder was completely hand made and is fully functioning, as is the pike pole directly above it. The original truck didn’t have a siren on it, so the guys made sure to fix that by finding, ordering, and adding an electronic siren that is wired to work from the dash. Also from the dash, you will find the control for the working lights. The final touch is the most striking: ghost images on the hood. You can only see these in certain lights and only from certain angles, but there are hod-rod style flames, and Liam’s name.

It is obvious from the moment that you set eyes on this truck that it is an extremely unique gift that was made with a tremendous amount of love – which is why I was speechless when we were surprised by it, and I get teary eyed when I share about it with other people.

There is one additional chapter to this amazing story…the photos that you see below. Before the truck was turned over to Ezra to play with (which is what the folks that built it asked for – because I wanted to put it in a display case), I wanted to take some good pictures of it. So I contacted a photography studio that is here in Castle Rock and they were receptive to the idea. Ezra and I went there this morning and had an amazing experience with them, and ended up with some amazing photos. The folks at Forever Yours Photography not only opened up their space to us, they walked me through a studio photo session step-by-step….all as a donation to someone in their community.

So here are the photos that despite how awesome they actually are (joke), could never show how awesome the truck actually is. This is another gift that we have no way of ever being able to say thank you enough, so we will instead smile and think of Liam every time that Ezra drives his very own custom ladder truck.

How Many Kids Do You Have?

I’m of the opinion that there is an upside down bell curve as it relates to the number of people – and therefore questions – that we are facing whom don’t know our story. It goes something like this: as we were in the hospital and immediately afterwards, we were only surrounded by close friends/family and our story was only shared through face-to-face conversation or this blog…essentially everyone that we dealt with knew what was going on. As the days went by and we were forced back into life, we started to go to more publicly exposed places (ie: parks, grocery store, work, etc) and ran into a few people that we loosely knew through various past ventures that didn’t know what had happened; and even a few of them knew that we were expecting, but didn’t know the outcome. So we started to have to have uncomfortable, somewhat superficial conversations with people that we rarely see…because we just aren’t going to lie about it. And deflating someone’s day with such sad news isn’t a fun thing to do.

As a little more time has passed, it seems like we have now run into just about everyone that we are going to see on a regular basis, hold a few exceptions. Most notably are family members that know the story, but we just haven’t seen in person yet due to distance. These are encounters that we are just going to have to deal with as they come – but they are anticipated. The other notable exception is people that are so loosely affiliated with us that they know us by circumstance, but don’t know anything about us….like the person that gives me a haircut, amongst others (side note because I know a few of you are already thinking it: yes, I go and get my head shaved somewhere and yes, I could do it at home….but there is a business here in town that is a tremendous supporter of the fire department, so I decide to support them).

As I sat in the chair yesterday morning, the usual simple banter started….How are you doing today? (PS – when you answer this questions even remotely honestly – ‘ok’ – you get several follow up questions of disbelief and attempted resolution) Are you sure your just ok? What are you up to today? Don’t have to be at work?….then the inevitable begins, and it goes down a road that you just can’t stop no matter how hard you are pulling on the brakes….You have a kid right? How old is he? Does he have any brothers/sisters? Are you going to have anymore?

These are all innocent enough questions, and assuredly safe enough to ask 99% of the time. But being in our shoes on this end of the question, it’s a tough spot to be in. Due to the extent of relationship (or lack thereof) and what was mentioned earlier about not having a lot of fun ruining someone’s day, I have now come to a place where I answer them as bluntly and simply as possible. How many kids do you have? One. Are you going to have anymore? I don’t know. No drawn out tales of the past several months. No in depth explanation why I am ‘only ok.’ Tears and stomach butterflies being repressed with all available resources.

The difficulty is that we don’t know when or where they are going to come from. Going out to get a simple 10 minute haircut and tripping into a world of emotion is stomach churning each time. Of course neither of us hold anything against anyone who asks these questions to us….to start, they care enough to even ask. We both know that we are likely going to encounter these types of conversations for a long while to come, and some variant of these conversations for the rest of our lives. I suppose that on some level, they are forcing us to confront what has happened in a visible way…and they are forcing us to think about Liam – which no matter how difficult it may be, isn’t bad at all.

It’s Too Easy

Yea, that’s actually what it says: it’s too easy…and herein lies the rub.

It’s been two months, as of today, since we last held Liam; and that hurts a lot. Two months ago we sat at the hospital and had our lives irreversibly changed in a way that we didn’t want them to be changed. We left the hospital with a feeling of sadness and loss that has only gotten more intense, and we haven’t been back. There are moments, even hours, that go by and Liam isn’t at the forefront of each and every thought; and we hate that. And the normal activities in our day-to-day lives are all to simple and easy. And it’s in that simplicity that we are constantly reminded of what we don’t have.

Take yesterday for example…just like any other randomly selected day in our current lives. We woke, made some breakfast, and watched a little TV. We decided that we would go for a walk/run and loaded the car – with a stroller for one. After that, I went and ran a few errands by myself and Ahna and Ezra played outside before heading to the grocery store. All of that done without worry or concern for a baby’s feeding and napping schedule. In the evening we went down to my parent’s house for Passover Seder, and enjoyed a wonderful meal well into the evening without a glimmer of a crying or needy baby in sight. Trust me when I tell you that’s its just has hard to write this down as it is to live it. It shouldn’t be this simple. It really sucks.

It’s a heavy-hearted day. We miss Liam.

Signs Of Spring

Even though the weather isn’t entirely spring-like (it’s been a typical Colorado spring thus far: snow in the mountains, and front range weather bouncing back and forth between late winter and early summer), there are examples that spring might be just around the corner. And while this isn’t entirely good news for skiers like myself (because that means that summer isn’t too far away), it is good news for earthly things like trees. And as such, Liam’s tree is starting to bud…